Programme

Board and Industry Meetings
FRIDAY 20th MAY
09.00-10.15 FIN & Shire Meeting FIN Board & Shire
10.15-10.45 Tea/Coffee Break All
10.45-12.00 FIN & Amicus Meeting FIN Board & Amicus
12.00-13.00 Lunch All
13.00-14.15 FIN & Genzyme Meeting FIN Board & Genzyme
14.15-18.30 Break All
18.30-21.00 Dinner All

programme.pdf

FIN Expert Meeting
SATURDAY 21 MAY
Session 1 Chairs: Prof. Atul Mehta & Prof. Yoshikatsu Eto

09.00-09.15 Welcome & Introductions Christine Lavery

09.15-09.45 Opening remarks &
an introduction to Fabry
disease in Japan		 Professor Yoshikatsu Eto

09.45-10.15 Understanding the natural
history of Fabry disease		 Professor Atul Mehta

10.15-10.45 Break
Session 2 Chairs: Dr Dominique Germain & Dr Ichiei Narita

10.45-11.15 Fabry disease in females Professor Dominique Germain

11.15-11.45 Fabry disease in children . The
need for early intervention		 Dr Dau-Ming Niu

11.45-12.15 Fabry experience for children
in Australia		 Megan Fookes

12.15-13.15 Lunch
Session 3 Chairs: Dr Uma Ramaswami & Dr Toya Ohashi

13.15-13.45 Fabry disease and the valve of cardiac imaging Professor
James Moon

13.45-14.15 Fabry Disease and the kidney Professor
Andrew Talbot

14.15-14.45 The Importance of access to medicine for Fabry Disease Anne Grimsbo

14.45-15.15 Break
Session 4 Chairs: Jack Johnson & Anna Meriluto

15.15-15.45 The role of ERT and the emerging therapies in Fabry disease Dr Derralynn Hughes

15.45-16.15 The role of ERT and the emerging therapies in Fabry disease Dr Derralynn Hughes

16.15-16.45 Discussions on patient expectations for current and new therapies Jack Johnson & Anna Meriluoto

16.45-17.00 Thank you and End Jack Johnson


19.00-22.00 Dinner at the Green Rattan All